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CONTACT DANIELLE'S DOCTORS - Page Updated 5/23/09

                      

Dr. Milton Waner:
                                             PO Box 38264
                                             Ground floor
                                             New York, NY 10023
                                             He Operates 4 days a week except Tuesday, which is his only clinic day to see patients.
                                             His surgeries are performed at Roosevelt Hospital and at Beth Israel Hospital.
                                             He is non participating provider with insurances but will work with all insurances out of net work. We try our best to help all patients regardless of their insurance.
                                             Dr. Waner also has his own foundation called Waner children’s vascular anomaly foundation (see below) and with the help of people donating monies.
                                             He is able to help some patients with funding for procedures and or hospital stays.
                                             There are several people that can help you. You can check our website to get a list of people that can help with what ever the patients needs are.
                                             http://www.vbiny.org/

                                             http://http://www.nyhni.org/faculty/milton_waner/index.html/

                                            
                                             Information on Dr. Waner and the NY Program: Ada is the office manager for Dr. Waner. This is some information she has provided:
                                             With regard to the apartments. The hospital provides apartments at extremely discounted rates for NYC. They are across the street from the hospital. The rates are as follows:
                                             Studio = $75/night
                                             1 bedroom = $100/night
                                             2 bedroom = $125/night
                                             These apartments are not only for Dr Waner's patients. They are used for all the "Beth Israel "
                                             doctors with patients from out of town so they fill up fast.
                                             If you have a set date for your visit with Dr Waner, you should contact his
                                             office right away to reserve these apartments. Ada takes care of all "Guest
                                             Housing" reservations, so call Ada at (212) 987-0979. She will fill out the form.
                                             Make sure when you call, some of the information needed is:
                                             1) arrival date, (2) departure date, and (3) a major credit card (American Express, Mastercard
                                             and/or Visa) just to reserve the apartment.
                                             Second, the office hours for Dr Waner's new office are:
                                             Monday 9am to 5pm
                                             Tuesday 8am to 4pm
                                             Wednesday 8am to 4pm
                                             Thursday 8am to 4pm
                                             Friday 9am to 5pm
                                             Friday 9am to 5pm
                                             THE OFFICE IS CLOSED EVERY DAY FROM 12:30PM TO 1:30 PM FOR LUNCH.

                                             Dr. Waner's team tries to work with everyone since most of the parents are from other states.
                                             Please be patient and everyone is called or contacted with an appointment.
                                             Third, with regard to insurance. Mayra Alvarez-Ross is his Billing Coordinator.
                                             She does all precertifications for insurance companies.
                                             She does not have anything to do with the billing for the hospital or
                                             know anything about the costs for the hospital. She will contact
                                             each person's insurance and give them any and all information they need
                                             to precertify the surgery and/or procedure for all patients.
                                             Hopefully this information has been helpful. If there is anything else
                                             you might need to know, contact Dr. Waner's office
                                             during office hours. The numbers & e-mails are as follows:
                                             Tel: (212) 987-0979 and the fax is: (212) 987-2393
                                            

Dr. Waner's E-mail: mwaner@chpnet.org
                                             ada Wisniewski (office manager): awisniewski@chpnet.org
                                             Janna Brown (Sr ENT Specialist): jannabrown@chpnet.org
                                             Mayra Alvarez-Ross (Billing Coordinator) malvarez-ross@chpnet.org
                                             I hope this has answered some of the questions you have about Dr. Waner and his team.
                                            

Dr. Carla Gianonni:
                                             Texas Children's Hospital, Clinical Care Center
                                             6701 Fannin Street, 5th Floor, Suite 540
                                             Houston, TX 77030
                                             Phone: Toll free 800-364-KIDS (5437) or 832-824-1000
                                             Phone: Otolaryngology, ENT 832-822-3250
                                                                                         
                                             Dr. Giannoni's email address is: E-mail: giannoni@bcm.tmc.edu. Her primary focus is: Head and neck masses, chronic sinusitis, complicated otitis, laser surgery, stridor. Board Certification :American Board of Otolaryngology
                                             Medical School: Baylor College of Medicine, Houston, Texas
                                             Residency: General Surgery and Otolaryngology, Baylor College of Medicine, Houston, Texas
                                             Fellowship: Pediatric Otolaryngology, Texas Children's Hospital, Baylor College of Medicine, Houston, Texas
                                            

Dr. Andrew Gellady:
                                             Family Medical Center of New Port Richey
                                             5323 Grand Blvd.
                                             New Port Richey, FL 34652
                                             Phone: (727) 848-4878
                                             Email: info@fmcofnpr.com
                                                                                         
                                             Dr. Gellady graduated with honors from New York Medical College. He holds a dual board certification in Pediatrics and Pediatric Infectious Disease.
                                             He is a Clinical Professor of Pediatrics at the University of South Florida and a member of the American Board of Pediatrics.
                                             A native of Philadelphia, Dr. Gellady was one of the first Board Certified Pediatricians in Pasco County and was a founding
                                             Medical Director of the Pasco County Child Protection Team. He has been in practice for 30 years.
                                            
                                                                                         
                                                                                         

SUPPORT ORGANIZATIONS

 

HEMANGIOMA.COM:
                       http://www.hemangioma.com/

HEMANGIOMA HOPE-  Mrs. Cindy Dougan 8400 Rohl Rd, NorthEast, PA 16428
                                            Email:  CDouganHH@AOL.com
                                            Phone:  814/898-1054

THE HEMANGIOMA
SUPPORT GROUP:       
6349 N. Commercial    Portland, OR 97217-2022
                                            Phone:  503/289-6295

BIRTHMARKS AND
HEMANGIOMAS
INTERNETWORK
SUPPORT- 
                   
   Created by Michelle Greco
                                            Email:  Hemangioma@hotmail.com
                                            Http://members.tripod.com/~Michelle_G/indexH.html

HEMANGIOMA &
VASCULAR BIRTHMARKS
FOUNDATION:
                PO Box 106, Latham, NY 12110  Phone:  518/782-6937
                                            Email:  hemangiom1@aol.com
                                            Http://www.birthmark.org

HEMANGIOMA
SUPPORT SYSTEM:       
C/o Cynthia Schumerth, 1218 Monterey Tr. DePere, WI 54115
                                            Phone:  414/336-9399

HEMANGIOMA SUPPORT
GROUP NATIONAL
HEALTH
INFORMATION CTR:   
7045 N. Concord Ave., Portland, OR 97217-5439
                                            Phone:  503/289-6295

NATIONAL VASCULAR
MALFORMATIONS
FOUNDATION, INC.       
8320 Nightingale, Dearborn Heights, MI 48127
                                             Phone:  313/274-1243  Fax:  313/274-1243
                                           

OPERATION SMILE:      6435 Tidewater Drive, Norfolk, VA USA 23509
                                            Phone:  757/321-7645  Fax: 757/321-7660
                                            Http://www.operationsmile.org

HVBC:                 
                                            Email:  www.faces-cranio.org/disord/vascular.htm
                                            http://www.interlog.com/~abtface/

FACES: THE NATIONAL   
CRANIOFACIAL ASSOC
PO Box 11082 Chattanooga, TN 37401
                                             Phone:  800/332-2373 
                                             Email: faces@faces-cranio.org

ASSOCIATION OF BIRTH
DEFECT CHILDREN: 
   930 Woodcock Rd, S# 225, Orlando, FL 32803
                                            Phone:  407/245-7035 or 800/313-ABDC
                                            Http://www.birthdefects.org

LETS FACE IT:                 PO Box 29972, Bellingham, WA 98228-1972  Phone:  360/676-7325
                                            Or office in Concord MA Phone:  508/371-3186
                                            Email:  letsfaceit@faceit.org
                                            Http://www.faceit.org/~letsfaceit/

 FACES:                             PO Box 11082 Chattanooga, TN 37401
                                            Phone:   800/332-2373  Email:  faces@mindspring.com
                                            Http://www.faces-cranio.org

AMERICAN ACADEMY
OF DERMATOLOGY: 
   930 N. Meacham Road, Schaumburg, IL 60173
                                            Phone:  847/330-0230  or  888/462-3376
                                            Http://www.aad.org

                                           

DR WANER'S CHILDREN'S VASCULAR ANOMALY'S FOUNDATION
                                            Http://wwww.wanervascularanomaly.org

THE CENTER FOR
DISFIGUREMENT:       
848 First Colonial Rd.  Virginia Beach, VA 23451-6126
                                            Phone:  804/437-8200

FORWARD FACE:           317 E. 34th St. S# 901 New York, NY 10016-4974
                                            Phone:  800/422-FACE

NATIONAL BELLE
FOUNDATION:               
PO Box 385 Gracie Station, NY 10028-0004
                                            Phone:  201/467-9854

CHILDREN'S
CRANIOFACIAL
ASSOCIATION:               
9441 LBJ Freeway, S# 115-LB46  Dallas, TX 75243-4522
                                               Phone:  800/535-3643

STURGE-WEBER
FOUNDATION:
                PO Box 418, Mt. Freedom, NJ 07970
                                            Phone:  973/895-4445  Fax:  973/895-4846
                                            Email:  swf@sturge-weber.com
                                            Http://www.sturge-weber.com

 

MEDICAL  CONTACTS

ARKANSAS CHILDRENS
HOSPITAL
-                       Vascular Anomalies Program
                                            800 Marshall St. Mail Slot 836
                                            Little Rock, Arkansas 72202-7546
                                            Phone:  501/320-7546
                                           http://www.achexcellence.org/

BOSTON CHILDREN'S
HOSPITAL
:                       Vascular Anomalies Program, Dr. John B. Mulliken, Dr. Patricia Burrows
                                            Phone:  617/355-6441
                                            http://web1.tch.harvard.edu/
                                           

INSTITUTE OF
 RECONSTRUCTIVE
PLASTIC SURGERY-
NYU MEDICAL CT
R
      Hemangioma & Vascular Malformations Clinical Division
                                            Dr. Francine Blei  550 First Avenue New York, N.Y. 10016
                                            Phone: 212/263-5834  Fax: 212/263-5400
                                            http://www.irps.net/

SHANDS-UNIVERSITY
OF FLORIDA
                    Dept. of Otolaryngology Dr. Carla Giannoni, PO Box 100264 Gainesville,
                                            FL 32610-0264    
                                            Phone:  352/392-4061
                                            http://www.ent.health.ufl.edu/Patient%20Info/vasc_clinic.htm  or
                                            Http://wwww.ent.health.ufl.edu

CCHILDRENS HOSPITAL
OF PHIILADELPHIA
-     Hemangioma & Vascular Malformation Clinic Dr. Paul J. Honig,
                                            Dr. David Low, Dr. Kenneth Fellows
                                            Phone:  215/590-4213
                                            http://www.chop.edu/webmap.shtml

 CHARLOTTE PLASTIC
SURGERY & LASER CTR: 
Dr. Sean Freeman - Charlotte, NC,


ALBANY MEDICAL CTR:   Dr. Martin Mihm - Albany, NY

Children's Hospital of Buffalo    Hemangioma and Vascular Birthmark Center
 (HVBC)                                       http://www.chob.edu/Clinical_Services/HVBC/hvbc.html

 

RECOMMENDED READING

BIRTHMARKS:  A Guide to Hemangiomas and Vascular Malformations:
Published by Women's Health Publishing
Authors:  Linda Shannon, MS;  Connie Marshal, RN, MSN;  Dr. Milton Waner
888/235-7947

Children with Facial Difference:  A Parent's Guide
Published by:  Woodbine House
Author:  Hope Charkins, MSW
800/843-7323

Gianna's Wild Strawberry
by Dana Roberson Guerra with Gianna Guerra
illustrated by Molly Troxell
afterword by Linda G. Rabinowitz, MD, FAAP, FAADN
Available online at : http://www.enter.net/~happymail/WSPg01.html

 

National Health Law Program
1101 14th Street, NW, Suite 405
Washington, DC 20005
(202) 289-7661
Website: http://www.healthlaw.org

Pike Institute on Law & Disability
Boston University School of Law
617/353-2904

MEDICAL FLIGHT ORGANIZATIONS

The following organizations  offer free or discounted flights for families flying for medical reasons:

National Patient Air Transport Helpline
Phone:  800/296-1217  Fax: 757/318-9107
Provided by Mercy Medical Airlift
4620 Haygood Rd. @3 8
Virginia Beach, VA 23455

American Airlines - Miles for Kids
Dallas Fort Worth Airport, TX
Http://www.AA.Com
817/963-8118 or 800/433-7300

AirLifeLine
 800/446-1231
www.airlifeline.org

Angel Planes
West coast
702/454-4122

Operation Lift-Off (TWA)
314/895-5563

Pilots for Christ
East Coast
215/857-1234

Mercy Medical Airflight
703-361-1191

Southwest Charitable Ticket
214/904-4103

Skywish (Delta)
703/836-7112 Ext. 285

Operation Smile
Norfolk, VA
Phone: 804/625-0375
   (Will help pay for the surgery of a child with a hemangioma)